All Episodes

September 29, 2022 | 19 MIN

Advancing ALS Research…

This week, Jeremy welcomes Dr. Devesh Pant to the show to talk about new developments in ALS research. Learn more about...

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September 22, 2022 | 18 MIN

Preventing Harms Through Home Modifications…

This week, Jeremy talks to Alisa Brownlee, an Assistive Technology Specialist who helps people with ALS adapt their homes to...

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September 15, 2022 | 29 MIN

ALS Advocates Move AMX0035 Closer to Approval …

This week, Jeremy looks back on the role people living with ALS and leading ALS clinicians played in convincing an...

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September 8, 2022 | 13 MIN

Regulatory Advocacy in Action…

This week Jeremy talks to Kathleen Sheehan, Vice President of Public Policy at The ALS Association, and Ashley Smith, Director...

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August 25, 2022 | 24 MIN

ALS Advocates Respond to ICER Analysis in Public Forum…

This week Jeremy revisits testimony provided by ALS advocates and ALS Association leaders at a recent public forum to consider...

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August 18, 2022 | 23 MIN

Helping Fill the Gap in Medicare Coverage…

This week Jeremy is joined by Kara Nett Hinkley, Vice President of State Policy for The ALS Association, and Patricia...

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August 11, 2022 | 12 MIN

Unpacking the FDA’s Action Plan…

This week Jeremy welcomes Dr. Paul Larkin, Director of Research at The ALS Association, to learn about the FDA’s recently...

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August 4, 2022 | 33 MIN

Reducing the harms of traveling while living with ALS…

This week, Jeremy talks to Maceo Carter about the challenges of air travel while living with ALS, and checks in...

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July 28, 2022 | 26 MIN

Research Into Preventing ALS…

This week Jeremy talks to Dr. Stephen Goutman, Director of the Pranger ALS Clinic and Associate Professor of Neurology at...

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